Health Education AIDS Liaison, Toronto


Outlook (India) / Magazine | Feb 25, 2002

Back From The Dead

The great Indian AIDS crisis now looks a case of statistical blunders and NGOs weaned on a share of the grants

DAVINDER KUMAR


If the oft-repeated prophecy at every international health seminar and countless entries in official directories of global funding and credit agencies in the last few years were anything to go by, India should have long become the aids capital of the world.

The AIDS Lie In India
  • UNAIDS reported 3.10 lakh AIDS deaths in India in 1999. NACO's toll from 1987 to Dec 2000 was a measly 1,759.

  • Figures reveal incidence of HIV in Manipur fell from highest (18 per cent) to among the lowest (0.4 per cent) in 1998.

  • NACO submits to Parliament in '98 that there are 81 lakh HIV/AIDS cases. Now scaled down to 38 lakh cases.

  • NACO now describes UNAIDS figures as guesswork. UNAIDS admits better methodology is required.

[ one lakh = 100,000 ]

Thankfully, the predicted hiv holocaust hasn't come true and now experts in the health sector are questioning the arbitrary manner in which figures were arrived at by reputed international agencies. Union health minister C.P. Thakur has even gone on record about the statistical discrepancies: "I am at a loss as to how there can be so many different estimates by different UN agencies."

Officials at unaids, the leading global body fighting hiv, admit to statistical blunders in the past and blame it on human errors committed at its Geneva office. Now, is it a coincidence that the errors seem to be happening too often in India's case? However, the agency promises that these will be rectified. Says Dr David Miller, country programme advisor: "Estimation of figures in recent years has become a very scientifically-based process in recognition of the need to have a reliable estimate. The agencies involved in the analysis of surveillance data are the National Institute of Health and Family Welfare, the National Aids Control Organisation (naco), who, unaids and some international experts. In order to avoid confusion, we have decided to release a figure arrived at by consensus."
"I am at a loss to explain the different estimates," says health minister Thakur.

"We would rather be late and right than premature and wrong," feels Dr Miller.

Now that hiv estimates have come under a cloud, doubts are being expressed about the projected enormity of the aids epidemic and the wisdom of spending the Rs 1,450 crore earmarked by the government for its prevention. Health activists are demanding that the government come out with credible hiv/aids data. This demand is not without reason. Ever since the first case of aids was reported in 1986, a multitude of wavering figures and projections mapping the epidemic have been dished out by the government-run naco and international agencies like unaids, who and the World Bank, the key players in the fight against hiv. Here are some of their inexplicable conclusions:

  • UNAIDS has in its epidemiological factsheets, brought out regularly since '97, carried estimates of hiv/aids in India from '87 onwards. It shows an incredible jump in hiv/aids cases from just one in 1986 to 5.19 lakh in 1987 [one lakh = 100,000]. No one's sure where these figures came from. Both unaids and naco were non-existent at the time. Neither was any credible surveillance system in place in India.

  • The 73rd parliamentary standing committee report on dreaded diseases, released in October 1998, put the number of those infected by hiv at 81.3 lakh. For the same year, the projection by naco and unaids was 40-50 lakh cases.

  • In September 1999, the figure of 85 lakh hiv/aids cases in India was quoted in the UN General Assembly.

  • The World Bank project appraisal document for proposed credit for the second phase of the national hiv/aids control project in 1999 made sweeping assumptions about the spread of the disease and the means to reduce it. One postulation was that one per cent of India's sexually active female population is involved in commercial sex work.

  • In June and December 2000, unaids released hiv/aids data for India in 1999. It quoted 3.10 lakh aids deaths in 1999. The number of aids orphans was 5.58 lakh. Both figures were subsequently deleted in the revised update released in June 2001.

  • NACO figures are at extreme variance. Cumulative deaths due to aids from 1986 to December 2000 was 1,759.

After the confusion over various projections, the health ministry introduced a new surveillance system in August 2000. The results were startling. The national average for hiv prevalence fell from 2.2 per cent to 0.35 per cent. Even more shocking were the revised figures for Manipur which was till then the target of most hiv/aids campaigns. From 18 per cent (highest in the country), the hiv/aids prevalence rate for the state fell to 0.4, one of the lowest in the country!

The erroneous calculations and faulty estimation has had a drastic impact on government priorities vis-a-vis financial outlay for the health sector. The aids scare meant that naco's campaign has been prioritised above health programmes for diseases like malaria, tuberculosis and kala azar. Even leprosy eradication has got stepmotherly treatment.

The second phase of the National hiv/aids Control Programme currently being implemented has a rich reserve of Rs 1,450 crore earmarked for it. Most of this amount has been sanctioned as credit by the World Bank and will have to be paid back from the public exchequer. Further, there is an even bigger share of funds directly flowing into the country from foreign donors to ngos.

Says Amit Sengupta, member of the Jana Swasthya Abhiyan—a network of over 1,000 grassroots ngos in the health sector: "Manipulating the figures suits both donor agencies and the ministry of health. The former because it allows them to push loans to combat the 'problem'. It allows agencies such as the World Bank to make domestic health policies 'captive' to their diktats and deflects criticism away from concerns that health problems in countries like India have accentuated as a result of the imf/wb-led economic policies. On the other hand, it is convenient for the health ministry because it allows it access to large loans."

There is also the bigger issue of the economics of combating the epidemic. "If one is to believe the claim that there are 35 lakh hiv/aids persons in the country, then annual treatment costs would amount to Rs 16,100 crore, according to the World Bank. Obviously, there is a vast market for creating the hiv/aids treatment infrastructure and enormous potential for the multinational pharmaceuticals to sell their drugs," says Purushothaman Mulloli of Joint Action Council Kannur (jack), which is leading the agitation against 'fraudulent' hiv/aids figures. Ramesh Sharma of the Gandhi Peace Foundation echoes the sentiment: "The entire campaign is being driven by multinational forces which are eyeing the huge market potential in the country."

Now consider the fact that unaids had reported 3.1 lakh aids deaths in India in 1999—which it later deleted. Dr Miller has this to say about the goof-up: "The mortality rate does need some scientific basis. We are looking at a number of alternatives to arrive at some accurate number. We would rather be late and right than be premature and wrong. We have been working with naco to get the correct figures. First thing would be to get the methodology straight and then derive figures based on that."

But naco officials blame unaids for projecting faulty figures. Notes Dr Mohammed Shaukat, deputy director (technical), naco: "By the year 1998, they (unaids) had calculated 41 lakh hiv/aids cases whereas our estimation was 35 lakh. unaids has its own mathematical models and their projections were based on mathematical guesses." If Shaukat is to be believed, the estimation of 5 lakh infections within a year after the first aids case was detected in 1986 by unaids could be at best guesswork for "sero-surveillance figures till '94 showed only some 50,000 infections."

Says Rami Chhabra of the Independent Commission on Health in India: "Flawed estimates in hiv/aids cases could result in scams of enormous public expenditures, vindicated through proclaiming success in 'infections averted' when such levels are not scaled in the first place. It is also leading to a scenario of fudged figures for 'sterilisation and births averted' in the family planning programme."

According to Chhabra, the worst impact is being felt on the Public Health Service (phs). "In the name of decentralised implementation, brand new registered societies in states, union territories and municipal corporations for hiv/aids have been formed. This compartmentalises the whole issue and creates a parallel infrastructure—highly resource-wasting and also less accountable," she says.

The only positive step in the anti-aids campaign is that everyone agrees that the figures in hand do not reflect ground realities. It is now for the health ministry to give its official stamp to what are the actual numbers.


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